The family of a 12 year old had given up hope for his son who has a rare & deadly brain disorder. As per some news officials, the father had spent all his savings, sold off his property & his wife’s jewellery. When all the doors got shut before the family then they decided to write a request letter to Prime Minister Narendra Modi. Later on, very unexpectedly they got a positive reply from him. The young boy, Parth is from Gujarat’s Amreli district and suffers from the rare Subacute Sclerosing Panencephalitis (SSPE), a deadly brain disorder related to measles (rubeola) infection. The disease is debilitating and progressive.
Parth’s father says, “He (Parth) was diagnosed with the disease (SSPE) some four months back. I consulted all the specialists in Amreli as well as in Ahmedabad but there was no improvement in his condition,”
“I sold all my property, including my wife’s jewellery, to help my only son. As a final resort, I wrote a letter to PM Modi and to the health ministry seeking help in the treatment for Parth,” he added further.
After few days writing the letter, the family received a response from the Prime Minister’s office assuring free and full treatment for the boy in All India Institute of Medical Sciences (AIIMS).
Parth’s treatment has started at AIIMS after PM forwarded the case to the specialists at the hospital. The family is now relaxed after getting support & financial assistance for Parth’s treatment. In their words, they had received moral support alongside financial aid. “While the financial aspect of the treatment has been taken care of, it is still an uphill battle for Parth,” said specialists at AIIMS. They also said his condition is very critical.
“This is a degenerative brain disease. We are providing every possible treatment to the patient. Currently, all the required tests are being done,” said Dr. Sheffali Gulati of the child neurology department at AIIMS.
While facing such obstacles, Parth’s father is satisfied within & confident that now everything possible is being done, he gives deep regards to the PM. This is not the first case where PM has stepped out to give a helping hand to a needy. Before this, another eleven-year-old boy from Unnao in Uttar Pradesh had written to the Prime Minister about the difficulty he faced in crossing railway tracks to reach his school.
This pushed PM Modi to interfere and ask Railways for expeditious remedial action. Thereafter, Northern Railways wrote a letter to the boy. There has also been a more such case where an eight-year-old girl Taiyyaba from Agra wrote to Modi seeking financial aid to treat her congenital heart disease. With the girl’s appeal, the PM office reciprocated by writing back the letter & also fetched all expenses incurred in her treatment.